Well let me start by saying the last few days, I have suffered something terrible. This is something that comes and goes with me. I am a sufferer from Connective Tissue Disease, Fibromyalgia, and was born with a deformity to both legs.
Recently I had a discussion with my doctor about long term care to help support pain management. Sure we can get medications. I had fought the doctor to stay off of pain meds for years , and finally gave in. I have two children to raise, and a house to run. I didn't want to have to worry about being groggy. But I did need some relief and finally gave in.
My doctor pointed out that if not for just a physical relief, but a mental one, that we need therapies that we can have weekly to alleviate the stress and pain. I recently had a mini nervous breakdown if you will, and the doctor told me after evaluating me that what I was looking for was a break from illnesses that will never go away. The next suggestion was to find advocates that would help with suggestions on how to fight the insurance companies to pay for therapy or equipment that they might normally decline. But who do you go to? Where do you turn? Talk about frustration!
So now I am on a hunt, and if any information turns up I will most willingly share this with my friends. It is very hard to live day to day feeling like you are up against a brick wall and there is no way around it.
Okay, so I let off my steam!
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4 comments:
I sure can appriciate the pain of fibro. The last few weeks have been horrible for me. Do you have trouble from time to time rememberinging silly everday thinks,like feeding the animals. One dasy last week I looked in the cupbard and said to my husband, why do we still have so much animal food,have I not fed them?Many times it feels like fire running through my veins instead of blood. the are times I will find small lumps and a few days later bruises. I can fall asleep sometimes in the middle of a sentance,and sine I work part times morings,have my own sewing/alterations shop here at home, and do a lot of work for the local cleaners I just push and push, then its like my body just says zzzzzzzzzzI am also prone to panic attacks but meds keep them pretty well under control nad only have miner ones now.
Hey Chelle:
It's Leslee from Fibromyalgia-Crochet. What a great site.
You are a strong and wise woman, never doubt it--and becoming wiser each day in the ways that count. The truly strong learn to bend with the wind so they do not break, as you are doing.
Take care
I am very very proud of my daughter Michelle. In spite of all her difficulties, she always will search out to get the information she needs. She will fight to the end to speak out what she believes in. I am proud to be HER mother, because she is a remarkable woman. I would like to think she got some of this from me, but I refuse to be so noble. She is an angel in disguise.
Mom
Thank you all for your comments! You all are making me blush!!
As for my fibro friends, yep it is amazing how one day differs to the next. On my good days I still am learning to pace myself because I want to squeeze in every moment possible while I feel well
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